2018 Benefit Honoring The Palm Family
Continuing our tradition of having The Kat Hall Wiffle Ball Classic benefit a local family in need, the 2018 tournament will benefit The Palm Family. All profits from this years tournament will go directly to the Palm Family.
The Palm Family
Lisa and Rob have four children; Alexa (17), Katie (15), Ryan (13), and Jack (10). Katie was a typical child until around 18 months, when we had some concerns. She would not look us in the eye and stopped mimicking words among other things. She was diagnosed with severe Autism around the age of two. In addition, they were concerned about Ryan, as he didn’t walk until 18 months and by the age of three still couldn’t walk up a stair or curb. After many doctor appointments, they eventually landed at the Neurology Department at CHOP where he was diagnosed with Duchenne Muscular Dystrophy at the age of three. Deciding they needed some good news, and confident Jack was not affected they decided to have him tested to rule out Duchenne - he was diagnosed at the tender age of thirteen months. Lisa and Rob were devastated to say the least. They had no idea how their lives would change or how difficult the years would become, from an emotional, physical and financial standpoint.
Currently both boys must utilize their scooters to get around. Jack has worsened significantly over the past year, only able to take a few steps on any given day. It is heartbreaking to the family and friends to watch them deteriorate. But it is especially hard for the boys to have their independence taken from them in such a cruel way. And with no cure, we all know what the future holds period.
Lisa and Rob are currently in need of a handicapped van so that they can get to and from their medical appointments, which are happening more frequently as the boys’ condition worsens.
About Duchenne Muscular Dystrophy - Duchenne is a progressive muscle wasting disease. It results from a defective gene responsible for producing the key muscle protein, Dystrophin, without Dystrophin cells easily become damaged and die. Resulting in death due to heart and breathing failure.
It is terminal - there is no cure -
Usually diagnosed prior to age five
Maybe bound to a wheelchair by twelve.
Most do not survive past their mid-twenties.